Dazzle of Zebras

In Person is Best

Those with EDS and their families can find a listening ear and helpful advice at our meetings. Members share what has helped, but we acknowledge that EDS is a complex condition and a treatment that benefits one patient might not help another. Since we do not meet that frequently and travel may be difficult for some, we encourage everyone to also utilize online support groups like those listed below.

Social Media

    Ehlers-Danlos National Foundation Support Community

Join or reacquaint yourself on the Inspire Ehlers-Danlos National Foundation Group to connect with over 18,000 members which form a very active, helpful group.

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Long Island EDS Group
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EDS New York Tristate Area